Anonymous Linking of Distributed Databases

Project Title Anonymous Linking of Distributed Databases
Date Posted
Tuesday, September 24, 2013
Status
Complete
Project ID
DA00008
Deliverables
Description

This report summarizes an effort to link individuals with records in two different electronic health systems via anonymous linking methods that avoid requiring either party to disclose protected health information (PHI) to the other.

Workgroup Leader(s)

Alvin Mushlin, MD, ScM, Weill Cornell Medical College, Department of Public Health, New York, NY

Workgroup Members

Curtis Baginski, BS, IBM InfoSphere Solutions, Bethesda, MD; Carlos Bell, MPH,Office of Medical Policy, Center for Drug Evaluation and Research, US Food and Drug Administration, Silver Spring, MD; Bonnie Brown, BS, MS, IBM InfoSphere Solutions, Bethesda, MD; Robert Dickson, BS, IBM InfoSphere Solutions, Bethesda, MD; Susan Forrow, BA, Department of Population Medicine, Harvard Pilgrim Health Care Institute and Harvard Medical School, Boston, MA; Chunfu Liu, ScD, HealthCore, Inc., Wilmington, DE; Stephen Lyman, PhD, Weill Cornell Medical College, Department of Public Health, New York, NY; David McDermott, BS, MS, IBM InfoSphere Solutions, Bethesda, MD; Brian Macy, BS, IBM InfoSphere Solutions, Bethesda, MD; Tobi Moriarty, BS, IBM InfoSphere Solutions, Bethesda, MD; Tom Puenpatom, PhD, HealthCore, Inc., Wilmington, DE; Mitra Rocca, PhD, Office of Medical Policy, Center for Drug Evaluation and Research, US Food and Drug Administration, Silver Spring, MD; Paul Romagano, BS, IBM InfoSphere Solutions, Bethesda, MD; Lucas Romero, MPA, Weill Cornell Medical College, Department of Public Health, New York, NY; Art Sedrakyan, MD, PhD, Weill Cornell Medical College, Department of Public Health, New York, NY; Nandini Selvam, PhD, MPH, HealthCore, Inc., Wilmington, DE; Jeremy Rassen, ScD, Division of Pharmacoepidemiology, Department of Medicine, Brigham and Women’s Hospital and Harvard Medical School, Boston, MA

Data Sources
New York Hospital for Special Surgery (HSS) /Weill Cornell Centers for Education & Research on Therapeutics (CERT) orthopedic registry and HealthCore Integrated Research Database (HIRDSM)